Talk / Trust
Bridging the Gap on Privacy: The role of Design and Governance
Vanessa Barone & Woody MacDuffie
Can interfaces be designed to actually be transparent, informative and understandable with respect
to our users privacy and still be delightful experience?
No one can avoid privacy! Privacy has become part of our daily lives with respect to technology. Lately, most companies have been doing the bare minimum with respect to peoples' privacy. Cookie banners with just one call to action, accept, or the privacy policies that most people don't read and usually accept without truly understanding what is happening to their data. We utilized in-depth interviews to collect qualitative data on a person's understanding of the key elements of a privacy while using technology, how they evaluate the risks to their privacy and confidentiality and what additional information they would like to have to support autonomous decision-making capacity when it comes to sharing their personal data. We used the insights from our qualitative data to inform, test and refine new design approaches to to provide people with agency with respect to their data privacy.
About the speakers
Vanessa Barone
Vanessa Barone is a Seattle-based research scientist with a passion for outreach and engagement to underserved communities. My work is focused on the use of mobile health applications to empower people to participate in research in a way that aligns with their values, provides meaningful insights into their health and allows participants to partner with scientists to move the biomedical field forward.
Woody MacDuffie
Woody MacDuffie is a Seattle-based designer specialising in designing for health. He has recently been a designer at Bill and Melinda Gates Foundation and the Head of Design at Sage Bionetworks, where he helped design several award-winning research apps for Samsung and UCSF (2018 Innovation by Design in Health) and Celgene (2018 IXDA honorable mention).